General Practice Data for Planning and Research (GPDPR)
• As of 1st July 2021 (this date has been postponed until at least September 2021), a new process – GPDPR - will come into being. Rather than having multiple extractions for individual uses (as with GPES) a single extraction will take place for multiple uses.
• Patients have the choice to opt out of their personal identifiable data being used for planning or research (Type 1 Opt Out and National Data Opt Out).
• If patients wish to exercise their right to opt out from the first data extraction, they will have needed to apply their Type 1 or National Data Opt out by 30th June 2021.
Type 1 Opt Out
Patients have had the right to opt out of having their Personal Identifiable Data shared or used for certain purposes since 2013.
Opting out of having your data shared or used for purposes beyond your direct care (secondary uses) only applies to identifiable data, such as Name, DOB, NHS number, address, not to other health data or anonymous data.
1. Patients can request that their GP practice DO NOT use their confidential patient information held in their GP medical record for purposes other than their individual care.
2. A patient can request that their Practice apply a Type 1 Opt Out to their record, verbally, in writing, or by completing a form. The practice will have to apply the correct code into EMIS to the patients record.
3. Practices cannot share that patients personal confidential/identifiable data with any other organisation unless it is for their individual direct care.
4. NHS Digital WILL NOT extract these patients data from GP practice records.
5. The practice will have to exclude patients who have the Type 1 Opt Out code when creating searches for planning or research.
6. Locally managed or agreed data extractions (e.g. for Population Health Management) will need to respect Type 1 Opt Outs and exclude those patient records.
National Data Opt Out – This is the option available to patients if they have the NHS App
Secondary uses (also called planning and research) comprises any activity which does not fall within the definition of Individual or Direct Care.
Secondary uses (planning and research) can be defined as:
“Activities that contribute to the overall provision of services to a population as a whole or a group of patients with a particular condition. It also covers health services management, preventative medicine, and medical research.”
1. The Patient has to register their preference on the ‘Your Data Matters’ site.
2. NHS Digital WILL extract these patients data from GP practice records.
3. NHS Digital WILL NOT use these patients identifiable or personal data for planning or research.
4. From September 2018 all healthcare providers must not use these patients identifiable or personal data for planning or research.
All GP practices in England are legally required to share data with NHS Digital for this purpose under the Health and Social Care Act 2012 (2012 Act). More information about this requirement is contained in the data provision notice issued by NHS Digital to GP practices. You have the choice to opt out if you wish to you need to complete the attached form and send this to your Practice. You can learn more about how NHS Digital uses your data here: General Practice Data for Planning and Research: GP Practice Privacy Notice - NHS Digital
Published: Jun 23, 2021